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Open in a separate window Data collection The data for the study were comprised of in-depth interviews Davidson, ; Giorgi, ; Kvale, conducted by members of ARTI between June and August All interviewers were trained and supervised by doctoral-level senior researchers with extensive experience in qualitative research.
For example, some parents preferred the school setting and time because they could participate in the research while waiting for their child, whereas others preferred the more familiar home environment.
Interviews in formal settings such as schools were conducted in private rooms to minimize distractions and increase comfort. All participants gave consent for interviews and a separate consent for audio recording. Participants were assured that their participation was voluntary and confidential.
The present study utilized a semistructured interview guide, which elicited in-depth narratives from parents of life with the child from birth to the present see Appendix. Interviewers remained flexible and open to topics introduced by participants, who guided the researcher through their particular narratives of parenting a child identified as ASD.
Key events explored were: Throughout the process, completed interviews were examined by senior researchers to monitor the data quality and to provide feedback to the interviewers.
Data analysis The tape-recorded interviews were transcribed into electronic format. Konkani, Marathi, or Hindi interviews were translated directly into English by research members fluent in both languages. Redundancy that offered no added meaning was removed.
Additional words were added by researchers only to assure readability. In addition, empirical trends in the data, such as the relative frequency of important parental experiences and the chronological ages of children, were noted and summarized when possible.
The presentation in this report includes both phenomenological findings, i. Analytic rigor was ensured via internal reviews by expert members of the research team.
In the resulting presentation, participants have been de-identified. The findings indicate a series of temporal structures. Four main temporal phases emerged from the data and are described in what follows. It was not possible to list the exact chronological duration of each because there were no definite boundaries between them.
The age of the child when each phase began also varied considerably between parents, and some parents had not entered the latter phases. In each of the four phases, the following three constituents were essential to parents in caring for their child: These aspects of parenting were present in the earliest period and continued to develop in later ones as described in what follows.
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